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Brain Tumours, John Bonham and Fat Pigeons
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| Brain Tumours, John Bonham and Fat Pigeons |
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| Brain Tumours, John Bonham and Fat Pigeons |
It was tipping it down with rain. The video doesn't quite show the extent of it, but trust me it was biblical...well, alright, it was raining a bit, but it meant I was going to get a lot wetter waiting for two busses than I would if I took a taxi, but I would have a nice hot coffee waiting for me at the end...hopefully.
It was lashing it down with rain (honestly, it was biblical), my trousers were soaked through and I'd only been waiting for fifteen minutes. I don't like being cold and wet so I decided to open up my taxi app, spend the fifteen pounds and look forward to having a mug of coffee in the very near future, and guess what?
Go on guess!
Yep, the bus emerged from around the corner. It offered immediate shelter from the rain and it saved me from spending fifteen pounds. Granted, it would take me into town, which was the exact opposite direction to Wildwood, and I would have to wait in the rain to catch a second bus, I was fairly sure I was going to regret this decision.
I shut my front door about thirty-five minutes ago, I was now even further away from my destination than when I started. I got to the bus stop to catch my second bus and I asked one of the people waiting if she could check the timetable for when my bus arrives.
Even if I wasn't in a chair, my poor eye site means that I still would struggle to see it. What if there was nobody here to help me? I think the wheelchair user is an after thought - if a thought at all other than doing the minimal amount so that they can tick a box on a form.
According to the timetable my bus was due in twenty minutes at 12:48 but the electronic board said 13:48. I'm sure this was an error but I'd arranged to be there at one o'clock. It was still raining (and remember, it was biblical) I was still cold, so I gave up and ordered a taxi.![]() |
I finally arrived at my friend's - Kim - house. The first hurdle to overcome was the inch high step up into her house. I had questioned this when we made the arrangement and her response was "ah, we'll manage, don't worry about it." In fact I had a number of worries that involved my wheelchair and her house. Her response was "we'll manage, don't worry about it." Although it soon became "WE'LL MANAGE!" I took this subtle hint to stop worrying about it.
I remember reading about special assistance on a very handy little blog called...oh what was it...oh, I remember! wheelchairworries.com 😁 (https://www.wheelchairworries.com/2025/02/wheelchair-worries-social-prescribing.html?m=1)
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| John Cleese |
"I'll get the train" I said confidently, as at this point it was July and the evening in question was a long way in the future. It was easy to say I would do it without thinking about the fact I was actually going to have to do it. Now it's in a couple of weeks and the thought of navigating the train station on my own made me apprehensive. I'm not the most confident bloke, but my trustee steed (iM4.Elite) is enabling me to get out of my comfort zone. So...
"I'll do a practice trip before the actual trip" I thought
"Because I'll probably cock it up"
And guess what? I was right.
I cocked it up!
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| Mind the gap |
Cock up number one.
Luckily my train was at 13:03 and the Trainline AI assistant told me I needed to give them a minimum of two hours notice. I called them on the morning of my trip and they arranged assistance telling me to go to the ticket office upon arrival.My taxi got me there about 30 minutes early, the pessimist in me assumed something was going to go wrong and I wanted plenty of time to spare.
Surely this wasn't going to go smoothly?
I went straight to the ticket office and informed them of my arrival.
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| Starbucks |
This is already my favourite way to travel. Granted, my opinion will change when the infamous train delays affect me. But for now, it couldn't be going any better.
Getting onto the train wasn't particularly simple. The train is a good height above the platform and there is a decent sized gap between the platform and the train. I had my wheelchair on the lowest speed setting [PICTURE OF POWER] so as to reduce the speed of the impact when I inevitably run into the back of somebody - some might say I'm a bit of a liability - not the best driver. I disagree, I say I'm an excellent driver
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| A wheelchair users view |
Here was my first opportunity to cock it up 👍
It only took us about 5 minutes to get to the toilets and I only spent a minute or 2 using the facilities but we were going to miss the connection... Well, I don't see how we were definitely going to miss the connection, but there was no point rushing when the next train was an 8 minute wait. So the special assistance changed my booking to the next train on a different platform and took me to it. He made a call and phoned ahead to the next station and arranged assistance at the next station.
I kinda cocked it up, but an adult was around to sort it 😁
Have I mentioned that I love this completely stress free method of travelling?
I boarded the train and by the time I positioned myself in the disabled space, the train had pulled into Manchester Oxford Road and I could hear the ramp being clicked into place.I was getting close to picking my chariot. I'd tested a few, I'd done research on others, I'd looked at the pros of renting over buying - spoiler alert, there aren't any - this was looking dangerously like I'd taken my time and was making a sensible decision. Fear not, I'm sure normal service will be resumed.
But for now I will remain on this path, I've even made this little table to show which chairs are in the running.
| Price | Showroom location | Carry weight (at it’s lightest) |
Range | Rear wheel size | |
|---|---|---|---|---|---|
| iM.4 Elite | |||||
| Freedom A06 | |||||
| Ultra Light Folding Electric Wheelchair |
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| Freedom Pro ST | |||||
| Automatic Folding Freedom Elite AF |
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| Freedom Elite ST | |||||
| Dashi Eco Foldable Powerchair | |||||
| Pride iGo | |||||
| Dashi (125kg) Folding Powerchair | |||||
| Invacare Alber Erivo Folding Powerchair |
|||||
| LW1 Lightweight Folding | |||||
| Zora | |||||
| Stratus |
I was pretty close to making a decision, but I thought it would be worth giving Wheelchair Services a call to see if they could help. Who are wheelchair services you ask? Good question. When I was first wheelchair bound it was part of the NHS - a department within Cannock Chase hospital. They were responsible for the maintenance and upkeep of your wheelchair. As time has moved on things have changed (I think we still had black and white televisions when I first used the service) and it was outsourced to a private company. There have been many companies over the years. I hadn't used them for several years after my last encounter with the MD/owner of the then current occupant - Opcare. But that's in the past, I won't say anymore... Except she was the type of person who would look out of the window, see it's raining and tell you it's sunny.
Oops, now, NOW I won't say anymore...
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| My book |
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| Quickie Q50r carbon |
| Price | Showroom location | Carry weight (at it’s lightest) |
Range | Rear wheel size | |
|---|---|---|---|---|---|
| Quickie Q50r carbon |
And the winner is...
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| iM.4 Elite |
As soon as I got it home I wasted no time in getting out and about it. It's an absolute game changer. Although, the same issue I had when testing the Freedom A06 still existed with this. The terrain dictated my direction, so I got into the habit of driving on the far side of the path, away from the road. At least this responded fairly quickly when you tried to rectify it. The Freedom A06 seemed to keep skidding towards the road until my heart was beating so fast it sounded like it was doing a drum roll. This was 3kg heavier but was still light enough to pick up, had bigger wheels and better suspension. However, unless the chair is too heavy to pick up, it's going to have this problem.
I embarked on a lengthy journey and intended to do several journey updates as I went, but it became clear I needed a phone holder to do this. I think they're onto something when they say you shouldn't use your mobile phone when driving. I found it quite hard to hold the phone while looking where I was going and looking where the camera was pointed and trying to commentate on my progress..
Fortunately there weren't any wheelchair police around.
I still wanted to try more wheelchairs, I was going to be paying a significant amount of money for something that I would have for a long time...hopefully. I thought I'd found a similar deal with Mobility Hire that I had with Easy Living Mobility I.E I could loan a chair, but that price went up considerably from the £93.00 visible on the website to £373.20...up again to £487.20 when delivery is added.
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| EeZeeGo LW1 Lightweight Folding |
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| EeZeeGo buying options |
£409! for 2 weeks! I could buy a chair from Etech for £845.50.
It doesn't seem like renting is a very cost effective option. I returned to Google and found a mobility showroom in Stoke - CareCo. They sell everything - mobility scooters, wheelchairs, motorised wheelchairs, walking aids, recliners and walking aids. I booked an Uber and made the 30 minute trip to hopefully take a few wheelchairs for a spin.
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| iM.4 Elite |
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| Freedom A06 vs iM.4 Elite |
I wanted to test some more chairs before making my decision.
Me:if I wanted to try before I buy, but can't get to Essex, am I be able to arrange a short term loan?
Them:You can take advantage of our 14 day return policy. We can ship the chair to you so you can check it meets your needs in the comfort of your own home. As long as the chair has not been damaged or used extensively outdoor we will accept a return and full refund. We can arrange the return process and collection for you so it’s hassle free.
Them:We can’t offer a loan ourselves but you can use Klarna or PayPal credit at our checkout.
Me:so I would have to pay full price and risk not being able to return it if I use it outdoors?
Them:Yes, you will have to pay. You can test it outdoors as long as it doesn’t get any damage. Some wear in the tyres is fine.
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| MX-Air from Mobility Extra |
Me:Are the prices on your website (for example:Lightweight Electric Wheelchair | Folding Powerchair | Freedom Pro ST) cheaper than if you buy instore?
Them:It will be still the same.
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| Dashi Eco Foldable Powerchair |
Me: I've gone through the buyimg process for the Dashi Eco Foldable but stopped before purchasing as it was going to cost £373.20 not the £93.00pw advertised? It's ordering for 2 weeks, I only want it for 1. I realise a £150 returnable deposit and VAT is included in this, but an extra £280 isn't right surely?
Them: Our minimum rental charge is for two weeks, so the online ordering will default at the minimum two. You are welcome to have the Powerchair for a shorter amount of time, but the minimum rental charge will remain.
Me: Can I pickup and return the chair myself? That would take £95 off the cost and with the return of the security deposit, that would be a total of £245 off.
Them: Please find below the revised quotation to include customer delivery/collection:
Minimum two weeks hire of Dashi Eco Foldable Powerchair: £186.00
Security Deposit: £150.00
Customer Collection: £0.00
Customer Return: £0.00
Total Costings: £336.00(ex VAT)
Look out for part III 'My quest to get a motorised wheelchair'
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| Me being an idiot |
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| Freedom A06 |
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| How to fold |